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Private Resources | Federal Government Resources | State and Tribal Government Resources | Publications and Educational Materials | Toolkits, Professional Guides, and Curriculums | Books and Educational Materials | FASD Diagnostic Clinics

Private Resources

Alaska Native Justice Center

The Alaska Native Justice Center (ANJC) is a nonprofit organization that strives to serve the unmet needs of the Alaska Native community by acting as a bridge between the community and the civil and criminal justice systems. The ANJC Web site lists contact information and highlights the center’s history, mission, and goals. In addition, ANJC Youth law services offers Alcohol & Drug Information School (ADIS), which is available statewide for individuals convicted of crimes related to alcohol use. ANJC also offers family law services that seek to resolve custody–related issues.

Phone: 907-793-3550
Web site: www.anjc.org Exit Disclaimer Graphic

American Indian Community House

The American Indian Community House is a nonprofit organization that provides for the health care, social services, and cultural needs of American Indians living in New York City. The Behavioral Health Department holds four-hour workshops about FASD every other month. The department also provides referrals for general medical services.

Phone: 212-598-0100
Web site: www.aich.org Exit Disclaimer Graphic

American Indian Family Center — Wakanyeja Kin Wakan Pi (Our Children Are Sacred), Minnesota

The Wakanyeja Kin Wakan Pi program is a part of the American Indian Family Center. The program addresses issues related to and resulting from substance abuse and FASD and prenatal substance exposure. The Wakanyeja Kin Wakan Pi program provides a comprehensive array of services, including mental health services, support groups, and therapy; a wellness and recovery program; and a case manager devoted to working with women who need recovery services. The program also provides education for parents and pregnant moms and referrals for FASD diagnostic services as appropriate.

Phone: 651-793-3803
Web site: www.aifc.net Exit Disclaimer Graphic

American Indian Health and Family Services of Southeastern Michigan – Native Healthy Start

The focus of the Native Healthy Start program is to provide support and education to women during pregnancy and to help them become and stay healthy before and between pregnancies. Services are offered prenatally and continue until the child is two years old. These services include in-home or office visits by a maternal and child health nurse; postpartum aftercare and follow-up services; and education about reduction of risk to the infant during the period of breastfeeding and about child development and parenting. Visits in the home or office are monthly. Women are provided with information about FASD on entry into the program. The women referred from the courts are provided with more intensive education on the risks of prenatal alcohol exposure.

Phone: 313-846-6030
Web site: www.aihfs.org Exit Disclaimer Graphic

Blackfeet Early Childhood Center – Prenatal Care Program, Head Start, Early Head Start, and Disabilities Program

The Blackfeet Early Childhood Center offers a spectrum of services. In the Prenatal Care Program, participants are taught about the baby’s development, physical and psychological changes, and the importance of brain development. In addition, the program teaches how alcohol, tobacco, and other drugs can affect the unborn baby. On entry to the program, participants learn the effects of alcohol and drugs to the fetus. After completion of the Prenatal Care Program, the children enter the Early Head Start program. If screening is needed, children are referred to the Developmental Assessment Clinic.

In the Blackfeet Early Childhood Center Disabilities Program, service delivery is coordinated with the local public schools, Indian Health Service (IHS), Blackfeet Department of Family Services, Quality Life Concepts/Part C Providers, and other programs available through Interagency Agreements.

The focus of the Disabilities Program is to identify and provide services to all children. The Blackfeet Early Childhood Center Disabilities Program provides services in the areas of cognition, language, and fine and gross motor abilities, as well as self-help skills. During the registration process, screening for a disability is explained to parents.

The Blackfeet Head Start and Early Head Start Programs serve children with or without disabilities. Children with disabilities are given preference to enter the program, which is geared to accommodate children who have disabilities and to work with the parents. Children are referred for assessment and evaluation for intellectual disabilities, as appropriate. These children can be referred outside the program as needed, but always at the discretion of the parents. The Prenatal Program delivers prenatal care from conception until two months postpartum. Early Head Start provides services to mothers and their children who are age two months to three years. The regular Head Start program serves mothers and their children age three to five years.

Phone: 406-338-7370
Web site: www.inaksim.com Exit Disclaimer Graphic

Bristol Bay Area Health Corporation – Infant Learning Program

The Infant Learning Program (ILP) is a home-based program that provides early intervention services to any infant or child experiencing developmental delays. ILP offers educational services, therapeutic intervention, and guidance for those seeking additional services. This program serves infants and children up to age three years. The hospital refers children to the program if there is evidence of developmental delay; at least 50 percent delay is required for entry into the program. ILP performs screening and assessment to identify whether the child is eligible for the program. The ILP staff visit infants, children, and their families in the program every three months. The staff also provides services and information on coping with specific disabilities on a case-by-case basis. More than one-half of the clients are Alaska Natives.

Phone: 907-842-3398
Web site: www.bbahc.org/infant.html# Exit Disclaimer Graphic

Centers for American Indian and Alaska Native Health

The Centers for American Indian and Alaska Native Health supports the health of American Indians and Alaska Natives through research, training, technical assistance, publications, and continuing education. The centers have conducted research in child welfare, Head Start, risk factors for FASD, mental health, and other topics. Training and workshops are offered on digital storytelling, telehealth, and Native elder research. Projects are funded by various agencies and organizations.

Phone: 303-724-1414
Web site: www.ucdenver.edu/academics/colleges/PublicHealth/research/centers/CAIANH/NCAIANMHR/ Exit Disclaimer Graphic

Chugachmiut Tribal Consortium

Community health aides and community health practitioners provide direct medical care in the villages, as well as education and preventive services. The Community Health Aide Program of the Chugachmiut Tribal Consortium provides pregnant women information on FASD through one-on-one talks and also directs them to online information. Clients of the program are predominantly Alaska Native, but the program is open to the public.

Phone: 907-562-4155 or 800-478-4155
Web site: www.chugachmiut.org Exit Disclaimer Graphic

Cook Inlet Tribal Council

Cook Inlet Tribal Council provides residential and outpatient substance abuse treatment services. The recovery services involve Alaska Native culture and values. The Cook Inlet Tribal Council provides substance abuse treatment services and then individuals receive screening, if evidence suggests that they have an FASD. Information on FASD and the risks of prenatal alcohol exposure is included in the curriculum.

Phone: 907-793-3600
Toll-free phone: 877-985-5900
Web site: www.citci.com Exit Disclaimer Graphic

Fetal Alcohol and Drug Unit

The Indian Health Service funds the Fetal Alcohol and Drug Unit (FADU) to provide FASD information and strategies for prevention and intervention to American Indian and Alaska Native communities. The unit provides appropriate referrals for evaluation, diagnosis, consultation, and services for individuals and their families with evidence of or diagnosis of an FASD. In addition, FADU provides technical support for FASD issues, such as development of prevention measures, diagnostic capacity, and intervention programs. The unit is responsible for providing consultation to American Indian and Alaska Native individuals with an FASD and their families and for making referrals for FASD evaluation and diagnosis. This unit is also responsible for summarizing their aggregate research data on American Indian or Alaskan Native individuals and on recommended strategies to prevent FASD.

Phone: 206-543-7155
Web site: www.depts.washington.edu/fadu Exit Disclaimer Graphic

Great Lakes Inter-Tribal Council – Children with Special Health Care Needs/Community Care Project

The Children with Special Health Care Needs Project is funded by a Maternal and Child Health Grant through a Communities Care Project. The goal of the project is for each Native American child with special health care needs to receive a complete developmental and medical assessment, including creation of an Individual Family Service Plan (IFSP). The project trains and supports the Communities Care Coordinator—a Native American parent of a child with special needs—to assist other families to navigate the health, education, and social services systems.

The Children with Special Health Care Needs Project serves Native Americans at seven sites in Michigan, Minnesota, and Wisconsin. Tribal sites include Forest County Potawatomi, Lac Courte Oreilles, and Sokaogon Chippewa. Each tribal site has a local Communities Care Council consisting of parents and local service providers. These councils develop a working relationship to better serve families of children with special health care needs. The ultimate goal is to enable all parents to advocate successfully for their children and to support and sustain each other.

The Children with Special Health Care Needs Project receives referrals for children from someone within the tribal clinic or school system. If the family is interested, a meeting is arranged. The project provides referrals for evaluation, including diagnostic evaluation in Duluth, Madison, and Marshfield when needed. Transportation assistance is provided. This project does not work directly with the Department of Education, but makes referrals to Fetal Alcohol Syndrome Consultation, Education, and Training Services (FASCETS) for children’s educational needs.

The Children with Special Health Care Needs Project endeavors to help the families and to work with other agencies to develop the IFSP. The project also provides education to parents and families of individuals with an FASD, as well as access to local conferences on FASD, when available, and occasional trainings on request by families and communities. In addition, the Children with Special Health Care Needs Project arranges for speakers and trainings.

Phone: 715-588-3324
Web site: www.glitc.org Exit Disclaimer Graphic

Great Plains Tribal Chairmen’s Health Board – Northern Plains Healthy Start

As part of the Great Plains Tribal Chairmen’s Health Board, Northern Plains Healthy Start has the mission to address infant mortality and reduce health disparities of American Indian women and young children among its target population. The FASD Prevention Project supports the agency goal of improved pregnancy outcomes. The Northern Plains Healthy Start Program integrates evidence-based screening and brief intervention, which provides health care and targeted case management to pregnant and postpartum women.

During the intake process for the Northern Plains Healthy Start program, case managers perform screening for alcohol use in pregnant clients. If screening results are positive, the case manager provides brief intervention for the women at intake. All women who report more than occasional use of alcohol on the initial screening or who continue to use alcohol regularly on follow-up assessments are referred for formal treatment for alcohol abuse. The duration of service depends on the client’s progress. Northern Plains Healthy Start seeks to obtain agreement to abstain from alcohol use from pregnant American Indian women in Northern Plains American Indian communities within 13 Aberdeen area reservations.

The following tribes are served by the program: the Cheyenne River Sioux Tribe, Crow Creek Sioux Tribe, Flandreau Santee Sioux, Lower Brule Sioux Tribe, Mandan and Hidatsa and Arikira Nations, Oglala Sioux Tribe, Omaha Tribe of Nebraska, Rosebud Sioux Tribe, Sac and Fox Tribe of the Mississippi, Santee Sioux Tribe of Nebraska, Sisseton Wahpeton Oyate, Spirit Lake Sioux Tribe, Standing Rock Sioux Tribe, Trenton Indian Service Area, Turtle Mountain Band of Chippewa, and Yankton Sioux Tribe.

Phone: 605-721-1922
Toll-free phone: 800-745-3466
Web site: www.gptchb.org Exit Disclaimer Graphic

Hawaii Salvation Army Family Treatment Services

The Hawaii Salvation Army Family Treatment Services provides a continuum of services for women struggling with substance abuse, including a residential and outpatient program for women, therapeutic living for women in recovery, transitional housing, a preschool, and a therapeutic nursery. Many of the clients are Native Hawaiians. The organization has embraced a culturally appropriate holistic approach to treatment and recovery addressing spiritual, physical, social, family, and psychological aspects. Traditional Western, evidence-based practices such as cognitive behavioral therapy are used in the programs.

Phone: 808-732-2802
Web site: www.salvationarmyhawaii.org Exit Disclaimer Graphic

Ho’omau Ke Ola, Hawaii

Ho’omau Ke Ola is a Hawaiian substance abuse treatment center that provides a spectrum of services, including residential, outpatient, and transitional substance abuse treatment services. Ho'omau Ke Ola welcomes clients from the community and those referred from other sources. Traditional beliefs and values have been incorporated into the services. Through a cross-cultural view on healing and substance abuse treatment, clients participate in activities including community service, gardening, hula, and lei making.

Phone: 808-696-4266
Web site: http://www.hoomaukeola.org Exit Disclaimer Graphic

Indian Health Board of Minneapolis and American Indian Family Center – Twin Cities Healthy Start

Twin Cities Healthy Start targets American Indians and African Americans, but is open to all residents of Minneapolis and St. Paul, Minnesota. There are four sites in Minneapolis and two sites in St. Paul. The American Indian Family Center runs one site in St. Paul. The Indian Health Board of Minneapolis manages one site in Minneapolis. All Twin Cities Healthy Start sites offer prenatal classes, support for family, and other services and referrals, as well as help to find a physician—all free of charge. These sites also provide information about nutrition during pregnancy and about breastfeeding, labor and delivery, and parenting. At the Indian Health Board of Minneapolis, obstetricians discuss the risks of FASD with their patients.

American Indian Family Center
Phone: 651-793-3803
Web site: http://www.aifc.net Exit Disclaimer Graphic

Indian Health Board of Minneapolis
Phone: 612-721-9865
Web site: http://indianhealthboard.com Exit Disclaimer Graphic

Inter Tribal Council of Arizona – Women, Infants, and Children Program

The Inter Tribal Council of Arizona provides targeted services to American Indians living in Arizona through eleven, local tribal health departments and one, urban Indian Health Center in Phoenix. As soon as clients enter into the program, they are provided with a brief overview on substance abuse, the effects of maternal use of alcohol on the fetus, and are given print materials containing substance abuse information. The Women, Infants, and Children Program provides services to infants and children up to age 5, as well as pregnant women and those up to six weeks postpartum if they are breastfeeding.

Phone: 602-258-4822
Web site: www.itcaonline.com Exit Disclaimer Graphic

Inter-Tribal Council of Michigan — Healthy Start

The Inter-Tribal Council of Michigan subcontracts eight tribal and urban sites for Healthy Start in Michigan. These sites provide services in the Bay Mills Indian Community, Hannahville Indian Community, Keweenaw Bay Indian Community, Lac Vieux Desert Band, Little Traverse Bay Bands, Saginaw Chippewa Tribe, the Grand Rapids Metro Area, and the Detroit Metro Area. The services are open to all but target Native Americans. The Healthy Start program complements parental, postnatal, and pediatric medical care for pregnant women. All women in the program are educated about the dangers of prenatal and postnatal alcohol use. Women in recovery from substance abuse are provided with support services, which can continue up to 2 years after delivery.

Phone: 906-632-6896
Toll-free: 800-562-4957 or 877-482-3601
Web site: www.itcmi.org/departments/child-family-services/ Exit Disclaimer Graphic

Kodiak Area Native Association

The Kodiak Area Native Association (KANA) provides training on FASD with use of curricula developed by the Alaska Department of Health and Social Services—“FASD 101. Disabilities of Discovery: Insights into Brain Based Disorders” and “FASD 201. Developing Successful Interventions and Supports.” FASD 101 provides basic information about the physical and neurological effects of FASD. FASD 201 encompasses interventions and strategies for care of an individual with an FASD. KANA conducts trainings with behavioral health staff, families of individuals with an FASD, teachers, and other providers and provides training of trainers. Trainings are tailored to suit the needs of the target audience. Every few years, KANA offers a two-day workshop training for teachers that provides continuing education credit in conjunction with the University of Alaska Probation Accountability and Certain Enforcement (PACE) program. KANA also offers a learning program for infants and toddlers age 36 months or younger who may have developmental or medical difficulties or who are at risk of having problems.

Phone: 907-486-9800
Toll-free phone: 800-478-5721
Web site: www.kanaweb.org Exit Disclaimer Graphic

Native American Community Clinic – Medical Clinic and Healthy Generations Prenatal Program

The Native American Community Clinic (NACC) is a federally qualified health center. The Native American Community Clinic, Medical Clinic, provides diagnostic services to detect an FASD. A physician on site records a medical and alcohol-exposure history of the client and performs a physical examination. The physician uses the University of Washington’s 4-Digit Diagnostic Code for FASD and then sends results to other agencies for the neuropsychological testing. The physician typically performs three to five evaluations per week. Patients and their families can receive support and medical care through NACC.

In addition to diagnostic services, NACC oversees the Healthy Generations Prenatal Program. This program provides consistent messaging on prenatal alcohol use and, at every prenatal visit, performs initial screening and asks questions related to substance use. NACC providers co-created the screening program protocol in conjunction with the Minnesota Organization on Fetal Alcohol Syndrome (MOFAS).

Phone: 612-872-8086
Web site: www.nacc-healthcare.org Exit Disclaimer Graphic

The Haven – Native Ways

The Haven is a 90-day residential substance abuse treatment facility for women and their children. The facility is open to the general public, and the cost to patients is calculated on a sliding scale. The Native Ways program, which is offered to Native American women in treatment, incorporates traditional healing practices with gender-specific, evidenced-based treatment practices. Methods integrated into treatment include sweat lodges, talking circles, and other traditional ceremonies. The Haven also has a transitional house where women can reside for up to two years after treatment. Counselors talk to women, show a video, and provide them with print materials to increase awareness of FASD. Native Ways uses the White Bison Medicine Wheel and the 12-Step curriculum.

Phone: 520-623-4590
Web site: www.thehaventucson.org Exit Disclaimer Graphic

National Asian Pacific American Families Against Substance Abuse

National Asian Pacific American Families Against Substance Abuse provides current information and resources on substance abuse issues in the Asian American and Pacific Islander communities. The Web site includes facts and resources, news and announcements, information on the organization’s projects and events, and fact sheets and publications on Asian Americans and Pacific Islanders, as well as resources and links.

Phone: 213-625-5795 or 916-448-5911
Web site: www.napafasa.org Exit Disclaimer Graphic

National Indian Child Welfare Association

The National Indian Child Welfare Association (NICWA) provides public policy research and advocacy, information and training on Indian child welfare, and community development services. The association serves a broad national audience, including tribal governments and programs; State child welfare agencies; and other organizations and agencies, as well as professionals interested in the field of Indian child welfare. NICWA has projects in a number of areas, including children’s mental health, substance abuse, endangered children, and training of child welfare workers. The Web site includes listings of services and resources and information related to policy and research.

Phone: 503-222-4044
Web site: www.nicwa.org Exit Disclaimer Graphic

National Indian Justice Center

The National Indian Justice Center (NIJC) has developed a curriculum on fetal alcohol syndrome (FAS) that “…promotes a tribal multi-disciplinary team approach for responding to persons with FAS and alcohol related neuro-developmental disorder (ARND) who are involved in the tribal justice system as defendants, witnesses and/or victim” (NIJC Web site). The overarching goals of the curriculum are to “…increase awareness of FAS/ARND among tribal justice system personnel and to reduce the secondary disabilities associated with FAS/ARND, specifically those that result in increased criminal behavior among or victimization of persons with FAS/ARND” (NIJC Web site).

NIJC provides trainings with the FAS curriculum across the United States. The Department of Justice has combined the FAS and sexual violence curriculums for use in trainings the department has sponsored across the United States. Training can be requested from NIJC, and participants pay tuition for trainings. The FAS curriculum can be accessed on the NIJC Web site, and FAS/ARND components have been added to other NIJC curriculums, including those on child abuse, neglect, and sexual abuse and on improving tribal courts.

Phone: 707-579-5507
Toll-free: 800-966-0662
Web site: www.nijc.org/fas/ Exit Disclaimer Graphic

National Indian Parent Information Center

The National Indian Parent Information Center (NIPIC) is funded by the U.S. Department of Education. NIPIC provides information on disabilities for families of children with disabilities and professionals that work with disabled children. The center provides individual consultation and workshops on disability laws and parent leadership. Workshops are provided on and off reservations to tribes, Nations, and clans. Topics for disability workshops include child rights, Individualized Education Programs (IEPs), parent rights, and Section 504. Issues discussed in parent leadership training include locating resources for families and increasing parent-professional partnerships. Services are free to family members nationwide and are culturally appropriate for American Indian communities.

Phone: 541-244-1822
Toll-free: 855-720-2910
Web site: www.nipic.org Exit Disclaimer Graphic

Native American Children’s Alliance

The mission of the Native American Children’s Alliance (NACA) is to improve the “…response to Native American and…[Alaska] Native child victims of maltreatment and their families.” NACA seeks to accomplish this mission by providing (1) support and information on legal systems; (2) assistance in developing sustainability for child abuse initiatives in Indian Country; and (3) training for creation of child advocacy centers and multidisciplinary teams for Native communities, which coordinate responses and services for victims of child abuse. Trainings are conducted by request and through collaboration with national partners. NACA has also developed resources including a fact sheet on Child Sexual Abuse in Indian Country and a public awareness campaign kit on child abuse.

Phone: 918-683-5291
Web site: www.nativechildalliance.org Exit Disclaimer Graphic

Northwest Portland Area Indian Health Board — The Northwest Tribal FASD Project

The Northwest Tribal FASD Project seeks to address these disorders through development of model projects and multidisciplinary, collaborative partnerships in American Indian communities in Idaho, Oregon, and Washington State. This project focuses on training in community assessment and data gathering and assistance in establishing a systems-based approach to FASD in the communities where model projects are being developed. The Web site provides downloadable publications and resources on FASD that are targeted to American Indians. The Northwest Portland Area Indian Health Board also has several other projects related to health in American Indian communities.

Phone: 503-228-4185
Web site: www.npaihb.org/programs/the_northwest_tribal_fetal_alcohol_spectrum_disorders_project/ Exit Disclaimer Graphic

One Sky Center

The One Sky Center is a National Resource Center for American Indian and Alaska Native Health, Education and Research. It is dedicated to quality health care across Indian Country. The center identifies culturally appropriate, effective, evidence-based substance abuse prevention and treatment practices and disseminates this information to tribal communities. The One Sky Center provides individualized technical assistance with community needs assessment, services planning and collaboration, program development and evaluation, identification of funding mechanisms and opportunities, and assistance with advocacy. The Web site contains information on services, education, news and events, and resources.

Phone: 503-494-3703
Web site: www.oneskycenter.org Exit Disclaimer Graphic

Stone Soup Group FASD Parent Support, Alaska

Stone Soup Group is a nonprofit agency created to address the health and well-being of Native Alaskan children with special needs and their families. The group assists and supports families throughout Alaska. It provides information about community-based diagnostic teams, local agencies, and programs that work with families, children, and adults affected by FASD. The Web site contains information on strategies for helping children with brain-based learning differences; a list of FASD resources and support groups; lists of books, videos, and newsletters; and links to State and national FASD resources. An e-mail discussion group (Listserv) is available for parents and caregivers of individuals with an FASD, to network, seek advice, and support one another. Stone Soup Group is proud to be the nationally recognized, federally funded, Family-to-Family Health Information Center and Parent Training & Information Center for the State of Alaska. The group also offers workshops on basic information on FASD and auditory, balance, and visual exercises and workshop series on becoming a more effective caregiver. In addition, Stone Soup Group sponsors Nintendo Wii Clubs for children and youth with developmental disabilities, play dates, and an annual community picnic.

Phone: 907-561-3701
Toll-free: 877-786-7327
Web site: www.stonesoupgroup.org/FASD.html Exit Disclaimer Graphic

White Bison

White Bison is an American Indian nonprofit charitable organization that offers sobriety, recovery, addiction prevention, and wellness learning resources to the Native American community nationwide. Since 1988, the organization has offered healing resources. The Web site includes information about the Wellbriety Movement – a recovery process that uses the healthy principles, laws, and values of traditional culture. White Bison offers community workshops on a variety of topics, including grief, loss, and Intergenerational trauma, the Medicine Wheel and 12–Step program, substance abuse prevention in youth, and Wellbriety. Workshops are approached from a holistic perspective and in a variety of settings.

Phone: 719-548-1000
Toll-free: 877-871-1495
Web site: www.whitebison.org Exit Disclaimer Graphic

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Federal Government Resources

Centers for Disease Control and Prevention

Since 1991, CDC has been involved in FASD-related activities.The mission of the CDC FAS Prevention Team “to prevent fetal alcohol syndrome and other prenatal alcohol-related conditions and ameliorate these conditions in children already affected” (CDC Web site). The FASD Regional Training Centers are funded through the CDC function to create, implement, and evaluate curriculums for prevention and to facilitate identification of FASD and care of persons with an FASD. The centers incorporate the curriculums in training programs throughout the respective region. CDC has collaborated with other organizations to develop a toolkit for women’s health care providers, a school-based curriculum for teachers to use with children, a curriculum for tribal justice system personnel, and other materials and publications. CDC is funding three sites, in Arizona, Colorado, and New York, to establish or enhance population-based FAS surveillance.

Phone: 800-CDC-INFO (800-232-4636)
Web site: www.cdc.gov/ncbddd/fasd/index.html

Indian Health Service

The Indian Health Service (IHS) Behavioral Health Program strives to eliminate alcoholism and other drug dependencies and to improve the health care of American Indians and Alaska Natives (AI/AN). In 2004, IHS began to screen female patients for alcohol use, to identify and treat alcohol abuse and prevent fetal alcohol spectrum disorders (FASD). The Parent-Child Assistance Program is an evidence-based, FASD intervention program serving pregnant and parenting women and girls with high-risk of substance abuse, at 10 sites throughout the State of Washington. The program also funds the Northwest Tribal FASD Project at the Northwest Portland Area Indian Health Board. IHS and the National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention (CDC) have established a 3-year interagency agreement to implement and evaluate Project CHOICES, an evidence-based program that addresses risky drinking by providing education and counseling to women and girls of childbearing age who access the clinic for women’s preventive health services.

Phone: 301-443-2038 (Division of Behavioral Health)
Web site: www.ihs.gov/behavioral/

Interagency Coordinating Committee on Fetal Alcohol Syndrome and Spectrum Disorders

The Interagency Coordinating Committee on Fetal Alcohol Syndrome and Spectrum Disorders (ICCFASD) is hosted by the National Institute on Alcohol Abuse and Alcoholism. The goal of ICCFASD is to improve communication, cooperation, and collaboration among Federal agencies with programs on FASD or a special interest in FASD. Committee members work to exchange information and coordinate Federal FAS strategies and programs. ICCFASD has work groups that address the following issues: diagnosis; women, drinking, and pregnancy; the justice system; and education. Other ICCFASD work groups focus on relevant work of Federal Government agencies including: the Agency for Healthcare Research and Quality, U.S. Department of Health and Human Services (HHS); CDC; the Maternal and Child Health Bureau, Health Resources and Services Administration; IHS; the National Institute on Alcohol Abuse and Alcoholism and the Eunice Kennedy Shriver National Institute of Child Health and Human Development, National Institutes of Health; the Substance Abuse and Mental Health Services Administration (SAMHSA); the Office of Special Education and Rehabilitative Services, U.S. Department of Education; and the Office of Juvenile Justice and Delinquency Prevention, U.S. Department of Justice.

Phone: 301-443-3860 (NIAAA Communications/Public Information)
Web site: www.niaaa.nih.gov/research/major-initiatives/fetal-alcohol-spectrum-disorders

SAMHSA FASD Center for Excellence

The Substance Abuse and Mental Health Services Administration (SAMHSA), an agency of HHS, is the lead Federal agency addressing substance abuse and mental health services. SAMHSA's mission is to build resilience and facilitate recovery for people with or at risk for substance abuse and mental illness. The mission of the SAMHSA FASD Center for Excellence is to facilitate the development and improvement of prevention, treatment, and care systems addressing FASD by providing national leadership and facilitating collaboration in the field. The goals are to (1) reduce the number of infants born with prenatal exposure to alcohol, (2) increase functioning of persons who have an FASD, and (3) improve quality of life for individuals and families affected by FASD. Fact sheets and brochures can be downloaded from the Web site, which includes a searchable database of research findings and other materials on FASD. The FASD Center also offers a toll-free help line.

Phone: 866-STOPFAS (866-786-7327)
Web site: fasdcenter.samhsa.gov

SAMHSA Office of Indian Alcohol and Substance Abuse

The Office of Indian Alcohol and Substance Abuse (OIASA), SAMHSA, was created as a result of the Tribal Law and Order Act, to coordinate across Federal agencies that address alcohol and substance abuse issues. The goal of the Federal partnerships is to provide an infrastructure to develop a holistic approach in support of efforts to prevent and treat alcohol and substance abuse among American Indians and Alaska Natives. OIASA’s quarterly newsletter, Prevention & Recovery, highlights successful practices and stories in Indian Country and provides information and resources on alcohol and drug abuse for communities. OIASA collaborates in the development of a framework for setting interagency communication goals and provides technical assistance to tribal governments to develop and enhance prevention and treatment programs for alcohol and substance abuse.

Phone: 240-276-0549
Web site: www.samhsa.gov/TLOA/

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State and Tribal Government Resources

Alaska Division of Behavioral Health, Prevention and Early Intervention — Fetal Alcohol Spectrum Disorders Project

The Alaska Division of Behavioral Health, Prevention and Early Intervention provides a community-based, multidisciplinary, and culturally appropriate approach to FASD issues. The division provides training and technical assistance to organizations and agencies in the State of Alaska. The Web site lists the diagnostic clinics in the Diagnostic Team Network, as well as other resources including videos, fact sheets, brochures, and posters.

Phone: 907-465-4984
Web site: http://dhss.alaska.gov/dbh/fas Exit Disclaimer Graphic

Choctaw Nation Health Services — Chi Hullo Li, Oklahoma

Choctaw Nation Chi Hullo Li is a long-term, comprehensive, culturally sensitive residential treatment program for Native American women who are parenting or pregnant and their children. Participants must reside in Oklahoma and be age 18 years or older. The primary goals are to help clients stop substance abuse, develop strong families, and improve social functioning and to form support networks in client families and the communities.

Phone: 918-567-2905
Web site: www.choctawnation.com/services/departments/health-services/ Exit Disclaimer Graphic

Navajo Nation Department of Behavioral Health Services

The Navajo Nation provides training and technical assistance on FASD to treatment centers, behavioral health agencies, schools, courts, and social services. Training is also offered to jail and prison inmates, parents raising children with special needs, and foster or adoptive parents. Trainings are often translated into the Navajo language, and neighboring tribes such as the Hopi may also request trainings. The program works on prevention of FASD with high-risk mothers and families. Referrals are provided for diagnosis and other services for individuals who may have an FASD. Traditional substance abuse counseling and standard practitioner services are also provided.

Phone: 828-871-7945

Shoshone-Bannock Tribal Health Department – Fetal Alcohol Spectrum Disorder Team

The Northwest Portland Area Indian Health Board provides training and resource support to this diagnostic team, which uses the University of Washington’s 4-Digit Code for diagnosis of an FASD. A licensed social worker is the team coordinator, and the diagnostic team includes mental health staff, nursing staff, a family nurse practitioner, an early interventionist, a school psychologist, and a physician from IHS. Referrals come from various local agencies such as the tribal health department, the vocational rehabilitation program, and substance abuse programs. After a diagnosis is made, the team provides appropriate referrals for areas of concern such as development of an Individualized Education Program (IEP), vocational rehabilitation, and medical services.

Phone: 208-237-5631, ext. 107
Web site: http://www.shoshonebannocktribes.com/tribalhealth/tribal_health.html Exit Disclaimer Graphic

White Earth Tribal Council

The White Earth Health Department and Tribal Court in Minnesota are integrating into their service delivery system procedures for FASD screening, diagnosis, and intervention. A subcontract with the SAMHSA FASD Center for Excellence provided for screening and diagnosis and delivered intervention to dependent children up to age seven years who are in protective custody of the White Earth Tribal Court, primarily in the foster care system. The screening tool was developed by the SAMHSA FASD Center. A case manager performs FASD screening and refers all children with positive results for diagnostic evaluation. Minnesota FASD diagnostic clinics require confirmation of prenatal alcohol exposure before referral for an FASD diagnostic evaluation. Children with positive results for prenatal exposure to drugs, but not alcohol are referred to other agencies for services.

The Office of Juvenile Justice and Delinquency Prevention (OJJDP) Tribal Youth Program awarded the White Earth Tribal Council a five-year grant. This grant addresses services to children age 8 to 18 years who are delinquent and are involved in the Tribal Court. One goal of the grant is to adopt culturally appropriate and evidence-based assessment practices for intake. A screening tool developed by the principal investigator is used to screen the youth, and the services of a case manager are available for the youth as appropriate. OJJDP gives training and evaluation support to the project and a FASD Task Force is responsible for oversight.

The White Earth FASD diagnostic clinic receives most referrals from Indian Child Welfare in the court system. The clinic performs assessment for children and adolescents up to age 18 years. This diagnostic clinic originated with funding from MOFAS. The clinic is currently funded through State Medicare reimbursement. This clinic is fully functional with a pediatrician and psychology services provided by IHS and two school psychology students who complete the testing. The diagnostic clinic uses the Minnesota diagnostic approach, a method developed by the University of Minnesota, and new staff has been trained by MOFAS. The Minnesota approach for FASD diagnosis combines elements of the 4-Digit Diagnostic Code from the University of Washington, a method adopted from the Centers for Disease Control and Prevention, and the modified Institute of Medicine method.

In addition, the White Earth Health Department addresses FASD prevention by disseminating information at health fairs, community events, and conferences and uses the National Association for Fetal Alcohol Syndrome (NOFAS) FASD school curriculum in the area schools. The White Earth Health Department also presents at local community colleges, schools, tribal and non-tribal agencies, conferences, and other community events and holds events on FASD Awareness Day, including providing a speaker who has an FASD to make presentations at a school.

Phone: 218-983-3286
Web site: http://www.whiteearth.com Exit Disclaimer Graphic

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PUBLICATIONS AND EDUCATIONAL MATERIALS

Toolkits, Professional Guides, and Curriculums

A Practical Native American Guide for Professionals Working with Children, Adolescents, and Adults with Fetal Alcohol Syndrome and Fetal Alcohol Spectrum Disorder
Robin A. LaDue, Ph.D.
Published: 2000, Rockville, MD, Indian Health Service.

This manual provides an overview of FAS and FASD and attendant culturally appropriate guidelines for professionals working with individuals with an FASD. It is organized by specific domains in chronological order that are addressed by professionals. This work was supported by an IHS grant and administered through the Northwest Portland Area Indian Health Board.

Available online:

Beyond the 7th Generation: Faces Yet to Come: Fetal Alcohol Spectrum Disorders Prevention Curriculum for Middle School Age Youth
Strech, G., 1998, American Indian Institute.

The 7th Generation Fetal Alcohol Syndrome (FAS) and Fetal Alcohol Effects (FAE) prevention curriculum is created for American Indian students in grades six through eight in a classroom setting. The curriculum is designed to be used in combination with the video “Faces Yet to Come” included with the curriculum. The curriculum includes several activities to FAS prevention to stimulate learning and discussion. The curriculum has 16 lessons.

Available for order from the University of Oklahoma OUTREACH National Resource Center for Youth Services: www.nrcys.ou.edu/catalog/product.php?productid=156 Exit Disclaimer Graphic

Beyond the 7th Generation: Remembering What We Know: Fetal Alcohol Spectrum Disorders (FASD) Prevention Curriculum for High School and Young Adult Age Groups
Strech, G., 1998, American Indian Institute.

The 7th Generation Fetal Alcohol Syndrome (FAS) and Fetal Alcohol Effects (FAE) prevention curriculum is created for American Indian high school students and young adults in a classroom setting. The curriculum is designed to be used in combination with the video “Remembering What We Know,” included with the curriculum. The curriculum contains several activities related to FAS prevention, to stimulate learning and discussion.

Available for order from the University of Oklahoma OUTREACH National Resource Center for Youth Services: www.nrcys.ou.edu/catalog/product.php?productid=156 Exit Disclaimer Graphic

Gifts From the Sacred Circle: A Native Traditional Parenting Curriculum for Families Affected By Fetal Alcohol Spectrum Disorder
White Shield, R., 2012, Center City, MN, Hazelden.

Gifts from the Sacred Circle is an evidence-based program created for Native children and families affected by FASD. The curriculum is rooted in traditional American Indian spiritual contexts. The complete curriculum includes a facilitator’s guide, a parent resource book, and a toolkit with materials that help connect and extend the learning experiences into the home and community. Gifts from the Sacred Circle supports and strengthens families as they care for their children affected by FASD and themselves. The program identifies cultural strengths and resiliency factors that contribute to success as a caregiver of a child affected by FASD.

Available for order online: www.hazelden.org Exit Disclaimer Graphic
Toll free: 800-328-9000

Healthy Native Babies Project Workbook and Toolkit
Published: 2010, Bethesda, MD, U.S. Department of Health and Human Services, National Institutes of Health, Eunice Kennedy Shriver National Institute of Child Health and Human Development.

The Healthy Native Babies Project workbook and toolkit is available from the Eunice Kennedy Shriver National Institute of Child Health and Human Development, National Institutes of Health. The Healthy Native Babies Project workbook packet includes updated versions of the workbook and toolkit along with a handout on Healthy Action for Native Babies. The workbook is a comprehensive and up-to-date guide for health professionals, social workers, community organizers, and anyone working in Native communities. The easy-to-read, informative text outlines the facts of sudden infant death syndrome, action steps to reduce the risk, and strategies for reaching communities. The toolkit provides helpful information on how to adjust communication strategies for individuals who may have fetal alcohol spectrum disorders (FASD). The toolkit disk allows individuals to design culturally appropriate and regionally specific materials, such as posters, flyers, postcards, and brochures. The Healthy Actions for Native Babies handout provides visual and easy-to-read information tailored for individuals who have difficulty reading or who have cognitive problems including FAS, FASD, and traumatic brain injury. The packet is free and can be ordered online.

Download online: http://www.nichd.nih.gov/publications/pubs/Documents/healthy_native_babies_workbook.pdf PDF icon
Order online: www.nichd.nih.gov/publications/pubs_details.cfm?from&pubs_id=5733
Phone: 800-370-2943
TTY: 888-320-6942

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Books and Educational Materials

The Coming of the Blessing: A Pathway to a Healthy Pregnancy
Published: 2009, Atlanta, GA, March of Dimes

The Coming of the Blessing: A Pathway to a Healthy Pregnancy booklet is part of an initiative from March of Dimes for American Indian and Alaska Native families. The booklet is designated as a "promising practice"; by the Indian Health Service. As part of the initiative, March of Dimes offers prenatal education, training, and resources to families. The booklet contains traditional beliefs, provides information on having a healthy pregnancy, and addresses the role of partners.

Phone: 914-997-4488
Available for order online: www.marchofdimes.com/catalog/ Exit Disclaimer Graphic
Web site: www.comingoftheblessing.com Exit Disclaimer Graphic

Journey Through the Healing Circle Book Series

The Little Fox: Fetal Alcohol Syndrome: Your Special Child Birth to 5 Years Old (Journey Through the Healing Circle)
Published: 2000, Seattle, Washington State Department of Social and Health Services.

This story portrays a mother and father fox and their young daughter fox who has FAS. The focus is on children up to age 5 years. The story was created to help people understand the health problems and behavior challenges of children with an FASD resulting from the prenatal effects of alcohol on the brain.

Download online: www.dshs.wa.gov/pdf/publications/22-320.pdf Exit Disclaimer Graphic PDF icon

The Little Mask: Fetal Alcohol Syndrome: Your Special Child Between 6-11 Years Old (Journey Through the Healing Circle)
Published: 2000, Seattle, Washington State Department of Social and Health Services.

This book portrays two young raccoons with FAS and FAE who are left to fend for themselves in a strange alcohol-related accident. The focus is on age 6 through 11 years.

Download online: www.dshs.wa.gov/pdf/publications/22-356.pdf Exit Disclaimer Graphic PDF icon

The Little Fox: Fetal Alcohol Syndrome: Your Special Child Between 12-17 Years Old (Journey Through the Healing Circle)
Published: 2000, Seattle, Washington State Department of Social and Health Services.

This book tells of the day-to-day challenges of FAS and FAE through the story of a family of bears. The focus is on youth age 12 through 17 years.

Download online: www.dshs.wa.gov/pdf/publications/22-359.pdf Exit Disclaimer Graphic PDF icon

The Little Fox: Fetal Alcohol Syndrome: Your Special Child Between 18-22 Years Old (Journey Through the Healing Circle)
Published: 2000, Seattle, Washington State Department of Social and Health Services.

This book portrays a young puffin with FAS or FAE who is left to fend for himself in a tragic alcohol-related accident. The focus is on age 18 through 22 years.

Download online: www.dshs.wa.gov/pdf/publications/22-360.pdf Exit Disclaimer Graphic PDF icon

Sam's Bear (L'ourson de Sam)
National Indian & Inuit Community Health Representatives Organization
Published: 2009, Kahnawake, Quebec.

The National Indian & Inuit Community Health Representatives Organization is a national nonprofit organization representing First Nation and Inuit Community Health Representatives in Canada. Sam's Bear (L'ourson de Sam) was created to raise awareness of brain development and FASD. This book targets children age 5 through 8 years. The second half of the book targets caregivers and teachers. The book explains the impact of substance abuse to children and their parents. Sam's Bear is available in French and English free of charge, but shipping and handling charges apply. It is also available on the Web site in PowerPoint form for presentations.

Web site: www.niichro.com/2004/ Exit Disclaimer Graphic

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FASD Diagnostic Clinics

The FASD diagnostic clinics presented here have promising programs. There are other diagnostic clinics throughout the United States that are not targeting Native populations but could be serving them.

Alaska Division of Behavioral Health, Prevention and Early Intervention

The Alaska Division of Behavioral Health, Prevention and Early Intervention, provides a community-based, multidisciplinary, and culturally appropriate approach to FASD issues. The division offers training and technical assistance to organizations and agencies in the State of Alaska and facilitates a Diagnostic Team Network consisting of six diagnostic clinics.

Diagnostic Clinics in Network of Fetal Alcohol Spectrum Disorders Project—Alaska

Clinic/Organization Location Website
FASD Diagnostic Team—Assets, Inc. Anchorage www.assetsinc.org  Exit Disclaimer Graphic
Yukon-Kuskokwim FASD Diagnostic Team—Yukon-Kuskokwim Health Corp. Bethel www.ykhc.org  Exit Disclaimer Graphic
Fairbanks Fetal Alcohol Community Evaluation Services—Alaska Center for Children and Adults Fairbanks www.acca-ilp.org  Exit Disclaimer Graphic
Kenai/Soldotna Community Diagnostic Team—Frontier Community Services Kenai www.fcsonline.org  Exit Disclaimer Graphic
Mat-Su Diagnostic Team—Mat-Su Services for Children and Adults, Inc. Mat-Su www.mssca.org/mssca/  Exit Disclaimer Graphic
Sitka Neurodevelopmental Clinic—Southeast Alaska Regional Health Consortium Sitka www.searhc.org  Exit Disclaimer Graphic

All diagnostic teams received formal training at the University of Washington. The Alaska Division of Behavioral Health, Prevention and Early Intervention also produced resources including videos, fact sheets, brochures, and posters on FASD.

Phone: 907-465-4984
Web site: www.hss.state.ak.us/fas

Diagnostic Clinics in Hawaii

Clinic/Organization Website
FASD Diagnostic Clinic, Hawai‘i Community Genetics—Kapiolani Medical Specialists www.kapiolani.org  Exit Disclaimer Graphic
Department of Developmental Pediatrics—Tripler Army Medical Center www.tamc.amedd.army.mil  Exit Disclaimer Graphic

Shoshone-Bannock Tribal Health Department – Fetal Alcohol Spectrum Disorder Team

The Northwest Portland Area Indian Health Board provides training and resource support to this diagnostic team, which uses the University of Washington’s 4-Digit Code for diagnosis of an FASD. A licensed social worker is the team coordinator, and the diagnostic team includes mental health staff, nursing staff, a family nurse practitioner, an early interventionist, a school psychologist, and a physician from IHS. Referrals come from various local agencies such as the tribal health department, vocational rehabilitation program, and substance abuse programs. After a diagnosis is made, the team provides appropriate referrals for areas of concern such as development of an Individualized Education Program (IEP), vocational rehabilitation, and medical services.

Phone: 208-237-5631, ext. 107
Web site: http://www.shoshonebannocktribes.com/tribalhealth/tribal_health.html

Native American Community Clinic – Medical Clinic and Healthy Generations Prenatal Program

The Native American Community Clinic (NACC) is a federally qualified health center. The Native American Community Clinic, Medical Clinic, provides diagnostic services to detect an FASD. A physician on site records a medical and alcohol-exposure history of the client and performs a physical examination. The physician uses the University of Washington’s 4-Digit Diagnostic Code for FASD and then sends results to other agencies for the neuropsychological testing. The physician typically performs three to five evaluations per week. Patients and their families can receive support and medical care through NACC.

In addition to diagnostic services, NACC oversees the Healthy Generations Prenatal Program. This program provides consistent messaging on prenatal alcohol use and, at every prenatal visit, performs initial screening and asks questions related to substance use. NACC providers co-created the screening program protocol in conjunction with the Minnesota Organization on Fetal Alcohol Syndrome (MOFAS).

Phone: 612-872-8086
Web site: www.nacc-healthcare.org

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Note: The list of non-Federal resources presented here is not exhaustive, and inclusion on the list does not constitute an endorsement by SAMHSA or HHS.